Wheelchair Life: Grow Where You Want to Grow

I’m in my feelings today. I feel very limited, if not left behind. I’m mad at wheelchair life right now.

I truly enjoyed being at the park with friends for a bonfire back in October. That was so healing. Right now though, I long to wander, to hike trails and sit under a tree with my dog. I miss that today.

P17fieldfma - on the easel

I hope to get an electric wheelchair soon which would let me get to the front of the building, down a very long ramp then finally on the sidewalk. The sidewalk stops at the property line. No sidewalks. That’s a problem. We’ve lost 2 residents in 5 years bc they rolled in the street. I’m not doing that. There’s simply no where to go off property that’s wheelchair accessible.

I can’t tell you the longing I have to go outside my window and get to those beautiful rocks. I was told that our screens raise up. I don’t have to take it out then struggle to get it back in. I’ll have care again soon so I might test that.

The best way to manage my aching heart here is to do something for others. I feel like a trapped animal right now. Well, let me get outside this trap by reaching out.

Sitting in the grass keeping my problems in perspective

I’m so happy to say that my pen pal list has maxed out. It’s full. I actually have 20 letters that go exclusively to the elderly in nursing homes. They write back 🙂 Also, all the spots for plant homecare / babysitting are full.

I just added a monstera deliciosa from a wonderful person who needs nursing home care due to dementia. These’s a spider plant, monstera, rex begonia and an African violet that I’m looking after. Most are of memory care patients but one is from a person who takes care of her grandfather who has dementia.

It feels good to help with their favorite plants that they’ve taken care of for a long time. It’s something I can give to my friends who have been so giving to me.

There’s a plant that belonged to three generations of very lovely people. I’m so honored! Being able to take the plant torch is an amazing feeling.

Faith

Life in Pictures – The Assignment

My abandonment issues have raged since the exit of the CNA I adored. She’s been gone for a week now. It’s affected my trust issues, paranoia and OCD issues. Going through the week with her knowing she would be gone in a few days was rather difficult.

I can feel the anxiety and emotion in my throat. I’ve been dealing with it by concentrating on art, plants and the cat. I’ve done so very little volunteer work. Argh.

Poor Joe is going to need a lightweight shirt to wear for the winter. My menopausal symptoms have affected heating the apartment. I can’t take this heat! I had it so the heat would come on at 65 degrees even while I have an 8 inch strong wind fan blowing on me. It’s not good right now LOL I’ve only turned the heat on about 3x since the season changed. How is it possible to be anemic and have hot flashes hourly, daily!

There was a day again where Joe seemed to have trouble with his front paws so I made him a bed, this time it’s on the floor. I would have made a box bed for him but my cat hates boxes. He doesn’t get in them. As a matter of fact, Joe runs when he sees a box or plastic bag. Yeah, he’s odd.

I thought I’d try to track the barometric pressure so I can kind of anticipate his arthritis pain and mine. Getting too cold will only make matters worse for him. I hope getting a lightweight shirt will help. It needs to be light bc cats can overheat too easily.

When Joe isn’t wearing his shirt I could let him use his bed with a safe heating pad that auto shuts off every 2 hours. I can set it to a low temperature and put it under his blankets, like I did last time.

I’ve done nothing more with designing Frog Mansion. It’s set up nicely but it’s not finished. I’ve done nothing to the Tomato Frog Apartment 🙂 I’m not calling it that LOL It’s just that it pales in significance beside Frog Mansion where my Australian Green Tree Frogs live. Anyway, I intend to work on it at the the beginning of December, at which time I’ll also add more soil and leaf litter to the Mansion.

Putting many of my houseplants in the mansion didn’t give back as much space as I thought but it has helped me simplify my watering system. Now I water plants 3 days out of 7 instead of daily. And it only takes anywhere from 20 min to an hour to water. I love how simple it is now.

I’m uncertain if I spoke of my hope plant. I’m seriously in love with this plant bc it’s name is my favorite word; hope. It’s in the peperomia family, which I’ve come to enjoy lately.

I would be lying if I said I’m not going to buy more plants but I will say they’ll have to wait bc I’m going to need paint. I’d like to get to Hobby Lobby but I don’t think it’s going to happen. It would save money though. I’ve never purchased from their website.

I’m stuck on the art piece in the photos because I now regret adding the ghost-like memories leading to and through the house. I’m not certain how I’ll make it look right. I’d remove them if so many other images weren’t dependent on the ghost-like memories.

I’ve got a completed painting that I’m determined to completely seal by Monday. I seal paintings in very small areas at a time because I don’t want pooling, running or gaps in the seal. I’m not going to spray it, so it’ll take a little time.

I’m not sure why I’m procrastinating. In general I’m not a procrastinator but I’ve been putting this off for 3 weeks. I’m having trouble letting go. I think I’ve been unsettled and I’m holding on to things.

To also unsettle me are the recent mass shootings, three back to back with a horrific quadruple knife murder. I don’t even know how to process this stuff and manage my own horrors.

I check the news online once a day, from various sources.

I will continue to have zero friends on my Facebook page so I can limit the amount of exposure to politics and the hatred it produces.

Despite the fact that the world has gone mad, I feel 99% like my normal depressed, anxious, dissociative self. Do I feel strong? No. I feel prepared and supported. I feel I better understand this part of the assignment.

Faith

Doing new things in this old life

For the moment all is quiet in Frog Mansion. I’m exhausted and frankly over it. I guess the only thing left is for everything to grow in. The frogs are certainly enjoying the extra room.

I put together a 5 gallon aquarium as my prop box for plants I’ll use in building terrariums offered on Marketplace.

Poor Joe had a bad day. He was hurting just like me. I set up a little bed for him with a heating pad that I can set the temperature and the amount of time I want. It may have been overkill but I made sure he had one area cooler than the other so he could move if he wanted less heat. That’s his favorite blanket right there. Fortunately he’s doing much better.

I’ve been able to get out a bit more which has been tiring yet wonderful. I’ll be able to work at the carts that Jehovah’s Witnesses stand at downtown and in public areas. Yay! I’m going to be at the carts. I’m so excited! I love it. I love it. I cleaned the wheelchair really well. Got the wheels shining. Lol

Tonight I was able to laugh and joke with friends. We were all in a huddled in a circle just laughing with each other. It was great.

It’s so helpful to be able to get out of my little home and share with friends and strangers.

Tonight I felt my age which is not common for a multiple. But we were talking about being young in the past tense. We talked about how the young never expect to get older. I especially never thought about all that would stop working at 50. Wow. I think my left knee retired at 50. What happened to my teeth? My eye sight left the building, too. Excuse me but, I’m not ok with my hair thinning! Is it medication taking its toll or menopause, or both? Are my kidneys and heart getting in on the havoc, too? Gracious.

Menopause is still kicking my butt. It’s tearing me up! Wow. I’ve figured out that my symptoms peek every 3 weeks and that the most difficult symptoms to pop up are irritation and rage. That’s harder to manage than the constant brain fog.

Oh my gosh, the cravings. I was all over chocolate for like 2 months now I can’t live without popcorn. I’m stocked up on ACT 2 Extreme Butter as if we’re about to have a popcorn famine. I have to stop bc right now I still don’t have high blood pressure or high cholesterol. That might change if I am unable to get these cravings under control.

Another menopause issue is how easily I gain weight. It’s like the person across the table is eating cake but I’m the one who gains the weight. Due to kidney stuff and other health issues, I don’t even eat but 4 meals out of 7 days. My body is storing fat and water bc of how often it goes without. This has been a problem my entire life.

I am unable to tell when I’m hungry or thirsty. I never recognize hunger until it dawns on me that it’s 9pm and I’ve had nothing at all to eat. Today’s water intake is less than 20 oz of fluids. It’s not good at all.

I grab a cup of jello or apple sauce then go to bed. That’s it, for days in a row. I would be lying if I said I’m going to try to do better.

For some reason, the thought of using an alarm to remind myself to eat angers me. It feels like I’m being forced to do something I don’t want to do, use energy to make something to eat. After the hospitalization it became difficult to eat alone. I don’t know. It’s not good.

Art. I’m working on details in my new paintings. I’m correcting lines, adding cross hatching and shadows.

This is complete

One painting is complete. I’m so happy about that.

I llike the butterfly on her wrist

I’ve been processing the amputation in art. The above painting shows an amputation as well as another piece I started.

For the first time in forever, I need paint. It feels odd buying art supplies for some reason. I wonder if I’ll feel the same excitement when opening the Amazon box? I guess we’ll see.

Well, while nothing in this life is perfect, I’ve got few complaints right now. I’m ok, I think.

Faith

Bonfire. Dissociative Identity Disorder.

Bonfire. The most exciting news is that I was able to go to the bonfire my friends had. It was wonderful! I got to pet a cute puppy ??. Then when it got dark the kids put glow sticks on. They made glow stick glasses, ears and bracelets then played tag in the dark. It was one of the most pure things I’ve seen in a long time.

Sitting there with my friends I thought back to when I asked why I even survived the events of 2018. Life was unbearable and I wonder why on earth I survived just to feel so hopeless. Now the public health emergencies have ended and I don’t need to isolate any longer. So I went to the bonfire and laughed with friends I’ve known from 10 to 30 years. There were smores, BBQ and innocent fun. That is why I survived 2018. Moments like the night of the bonfire, that is what I survived for!

I was in the hospital 2 weeks ago which totally freaked me out and triggered PTSD issues. I managed it though.

I had the opportunity to put my feet in grass again, which was the first time since the amputation. Unfortunately, I can’t feel the grass anymore, there’s just not enough feeling in that foot. Later I thought about how I can put my palms in the grass instead of trying to feel it on the surviving foot. It’s also come to my attention that I can do grounding / earthing with the palms of my hands …… I find it interesting that when primarily people of color didn’t wear shoes it was a reason to call us uncivilized. Now it’s earthing / grounding.

DID and Mental Health Its noteworthy that during my mental health breakdown during the pandemic, I had a split. I’ve done so much work integrating but I’m susceptible to splitting again, and I have. I talked to Dr D about it bc I recognized 2 people here who had been integrated. It’s taken a few months for me to be certain that Maureen and Crystal have split off again. I’m not a doctor so I can’t give specifics on how, but I’m 100% certain of it. I’m kind of embarrassed.

It was the assault that sealed my decision not to further integrate. I have who I have. Lol. Of course I’m staying in therapy, it’s just not with the goal of integration.

So this is my long, drawn out entry about all that’s happening over here on Sundrip and in the last few weeks. ???? Some things are trying, but I’ve made a lot of progress on the new psych meds. I’m pleased with the spot I’m in. I can now stand to be in my skin.

Thanks for hanging in and reading my updates.

Until soon,

Faith

Words to yourself matter, choose them wisely

Over a week ago I saw my nurse practitioner. We talked about the PTSD from the hospitalization in 2018. I told her that I just can’t paint anymore. I added, “When the legs failed and my foot was amputated, so too was the art in me.” Well, I’ve said that before. I’ve been saying it for nearly two years, but that time I truly heard myself say it and I knew I believe it. That’s a problem for me. Don’t tell me I can’t do this anymore. I was mad at myself. How dare I speak to myself that way?! I can’t be the person I was born as? I won’t accept that.

Point blank, I was born an artist. That art comes in many forms; culinary arts, painting, making dolls and creating terrariums. I’m driven to make things in an artistic way. The only way I stop being an artist is when I stop breathing. It was close back in 2018. Even still I want to be in an artsty urn. It’s already been chosen cause y’all can’t put me in any ol’ thing. I’m just happy I’m not in said artsy urn right now.

When I realized I actually believed that I can no longer paint, like I said, I was mad. Later that evening I got out my paints and started painting. While painting I remembered saying something very important to myself – It doesn’t matter if it’s good, just enjoy the process. That’s the moment things changed.

It doesn’t matter if it’s good! I was willing to have the art piece fail and that is significant. Before getting new depression meds and having a little more clarity, I was too afraid to fail. It felt like I was a failure instead of the art piece not working out. But this time I didn’t internalize its possible outcome. That’s how I know I’m in a different space. I was able to separate the two. I’ve been painting for over a week now. I’m risking a bit more and it feels good.

I didn’t die in 2018. I’m still an artist through and through. Regardless of any amputation, there’s no way to amputate my art. I can’t tell you how relieved I am. I worked hard to get to this day. Oh my goodness I worked hard from the day they told me I wasn’t going to make it until this day. I’ve worked hard. It hasn’t been pretty, at all. Some things I messed up beyond fixing. I know I’ve hurt people by spilling anger or responding while unhealthy instead of just walking away. Why did this happen? Because I’m a speck of dust like everyone else and I do and say reckless things. But I am not a vicious person, just a profoundly imperfect one battling mental health and physical health.

I understand something now. You’d think I grasped this four years ago but I didn’t. I understand that I didn’t die in 2018.

My entire life changed. I can’t walk anymore but I’m alive. I’m extremely limited, but I’m alive! The person I knew myself to be left the hospital and the nursing home, then moved here. I don’t need to be afraid to live.

I was living this life of “why bother, I’m just going to fall over dead anyway. ” I was afraid to live, make attachments and risk a little because I just didn’t want to lose anything else. I feel like I lost so much in 2018 that the thought of losing anything else was unbearable. I was afraid to live. I’m in a better spot but I’m not OK. There’s so much more physical healing and emotional healing to do. I no longer worry I’ll have to endure it without my art.

What I’ve learned is that I believe the words I say to myself. I know you reap what you sew. If I plant tomatoes I get tomatoes. It works that way with words too. I was planting fear in my garden and that’s exactly what I got. Words matter. What I say to myself matters.

Art work – The painting changed quite a bit from when I started. It’s a collage now. And true to form, I’m working on multiple art pieces at once. My studio mascot Joe Schmoe is helping with quality control. He’s such a good studio cat and mascot.

I’ve been putting art in people’s homes since 2007. My 2023 art goal is to fill my own walls with my artwork. It’s time I did that. I’ll give an Etsy update soon.

Speak kindly to yourselves,

Until soon,

Faith

Sculpture with found items

I was searching through a catch-all art drawer. It’s got the stray button, string, cut paper, this, that and the other. Two days ago I was looking in that drawer, for who knows what, when I stumbled upon a split rock I’d written the word “hope” on. I put in on the table and kept looking. Then I stumbled on another split rock in a pear shape. When I put it next to the Hope rock my brain started ticking.

I am powerful – Hope

I abandoned the first search and concentrated on finishing the body to the figure. I used my own handmade beads for the hands. The 2 rocks are ones I picked up from the grounds of the nursing home back in 2018. I found 4 goose feathers I’ve had forever.

To top it all off I found a pop top that says, I am powerful.

Not for sale

I wrapped it with jute and glued it together with Mod Podge. I need to get a fine tooth comb so I can make the feathers neater.

This felt good especially since it was so spontaneous. I’m not the most spontaneous person in the world, I’m quite the opposite.

I hope I am regaining a little bit of trust. That’s the only thing that will allow art to flow from me again – trust. It never occurred to me to pray for trust but I have been recently.

Here’s what I was thinking – I firmly believe that when a person goes against nature that it hurts. At this point my lack of trust for anything at all prevents me from doing what is in my nature to do. I create stuff. I’m an artist from head to toe, however, I’ve not been able to do what comes naturally to me and it’s starting to hurt. I feel like a bird in a cage. Like the big cats at the zoo who pace back and forth at the bars. I feel that kind of anxiety since I’ve created so little.

Trust. I have to regain it. Courage is needed to trust. When it comes to art I need the courage to fail. I need self confidence so if an art piece doesn’t turn out I’ll keep it in perspective. The art piece didn’t turn out but it doesn’t mean I personally am a failure. All of those things changed during the hospitalization. The amputation is harder to accept and has affected my self esteem negatively.

I’ve commented that art was amputated too, but that’s not possible. But trust got shattered. I was walking my dog when my life forever changed without warning. How am I to trust “the moment” now? I don’t, not much.

I’ve been able to find relief from physical pain but my very core needs relief. The best way to sooth it is to create, trust and create. What is special about this sculpture is that its made from items I had before the hospitalization, during and after. The only part from this side of the hospitalization is the cap that says hope.

There’s so much work to do to regain my equilibrium. One step at a time, they say.

Faith

An environment that fosters creativity

It’s been a year since I finished a painting or started on a new doll but I feel like I’m at a place in my physical and emotional health to get to sewing again.

I look tired and I’ve got dark circles under my eyes but today was still a good day. This is the feeling that I lost with CNAs. Peace. I feel a measure of peace in my home again. I’m not emotionally healthy but I’ve still regained the peaceful, welcoming feeling in my home.

It’s been a good day

I believe one of the major blocks I had that kept me from creating much was the way I began to view the apartment. It started to feel more felt like a hospital than my home. Instead of feeling able and capable, I ended up in patient mode like in the hospital when I had no control over anything.

Another issue that I’m correcting is my lack of privacy. This efficiency apartment displays everything I own. I don’t like that so I made some changes to my furniture to gain more privacy. I honestly think when I’m better able to feel less on display and gain more peace at home that I’ll have taken a big step towards trusting my environment. When I feel I can trust again that is when some sort of painting will take place. Who knows what style of painting I’ll have. One should not have any expectations as to style.

Several times this week I came close to grabbing my sketch book but I couldn’t do it. The wall separating me from painting is weaker but still stands. Well, between surviving 2018 followed by Trumpism, Coronavirus, the recession, war and monkeypox, my ability to trust the moment got shattered. I’m happy to say it feels like I’m close to rebuilding an atmosphere conducive to creativity which includes sewing and painting. I’ve been working hard on building blocks so art can feel safe enough to happen.

I plan to be full swing into sewing even before the next ten days of bedrest ends. This will total 30 days on bed rest which has been torture.

In-home care is going very well. I feel secure with it. I know I’ll be able to have reliable help when I make messes. I also have two people to assist with getting items mailed out on time. I feel like I’ve done a lot of preparation….. and procrastination. lol

I’ve even narrowed down which days of the week I’m going to concentrate on sewing and days I’ll use for writing letters to elderly people. Basically I’m making sure I have what I need to succeed.

I refuse to make dolls in bed. I won’t lie, I’m up all the time. I’m going to steal an hour or so a few days a week and just return to bed after I’m done.

I’ve got back issues and a muscle spasm that stretches from the middle of my back all the way around to my navel. It feels like a belt. It’s stressing the bowel and bladder.

I’m on some strong meds and muscle relaxers 3x a day which means I’ll be sewing by hand at first. I don’t want a OUI – operating machinery under the influence of meds. lol Really though, I could get hurt so I’ll sew by hand until it’s safe enough to get on the machine.

You know what? My memory foam mattress remembers too much 🙂 Bed rest and memory foam are not friends. I’ve put an outline of my body in my memory foam mattress because of staying in it so long. lol…. I had to have my friend I call Mary Poppins aka Mary to turn my mattress around so I can put a body outline in the other side. lol Thank goodness it’s just a twin bed. It’s not terribly heavy to turn to the other side.

Anyway… as far as the type of dolls I’ll create, I’ve already got an idea in mind that I’d like to develop. The dolls will be sad dolls and some others will have body irregularities. One should not expect happy, wide eyed little girls, cause I don’t do those. I could only paint what was in my heart, it’s the same with sewing. I can’t relate to a grinning, happy, bubbly doll, but I can relate to and create dolls like Shiloh. She is a little soulful girl, full of emotion in her big brown eyes.

Shiloh by Sundrip

I’m nervous about sewing “sad dolls” because I’m not certain how they’ll go over in my Etsy shop. I made 3 a year ago or so. I sold one and kept two for myself.

While going through and sorting doll clothes I found a doll I thought I’d sold. This is Sweet Pea hanging out in a tree.

Sweet Pea by Sundrip

I don’t know what I originally named her but she has a new name since she’s staying with me.

Sweet Pea by Sundrip

She makes me smile with her rosy cheeks and her little shoes. I just adore her. She and Shiloh are part of my private collection.

I will have another doll update soon. Hopefully I can report that I’ve got everything cut out and that I’m started on sewing.

My Etsy shop is still closed for the time being, but you can visit the galleries here on Sundrip and you can purchase prints from my Redbubble shop.

Until soon,

Faith

Therapy Review: Sundrip. Death and Dying

Content: Self love. Sundrip and social media. Death and dying. Sexual Assault.

We talked about shame and guilt. Guilt is for actions but shame describes who I am.

Self Love. We talked about fear as it relates to self love. I fear saying I’m worth loving because doing so means I have to fully accept that my mother was wrong. To a certain degree I still deny the full impact of her actions and what she allowed.

I know I have self love to a certain degree. I said I love you to myself for the first time ever.

An opportunity for further targeted psychological treatment has opened up to me. I’m not in the mental health space to accept it but the offer stands. The practitioner, aka Hippie Therapist, will allow me to video conference. This doesn’t replace Dr D.

Sundrip. I’ve said several times over the years that I’d like to walk away from Sundrip.com as it is now. I know in my heart I can’t simply shut things down. Sundrip is my baby, but I think it’s time to bring this to a change from what it is now. It has been definitively decided that I’m closing the blog part of Sundrip in five months time. Why 5 months? Three months are too few but 6 is too long. I need to take gradual steps. I’ve set a date.

This is going to be difficult but needed. The world has changed since I started this blog. The internet has changed. Honestly, I fear I have too much to lose by continuing as is.

Death and Dying. We spoke about how I gasp and sit up in bed because of feeling like I’m on the gurney, at the hospital being wheeled to a surgery I wasn’t expected to survive. That was 2018 but it still haunts me. For days I said goodbye to my friends. We wept and supported each other. I apologized for the hurt I was causing by being in that condition. I said goodbye to my long term therapist. I so did not want to hang up.

It felt like I had been given the death penalty and that at 11am (?) I was going to die.

That hallway was long. The room was cold. They asked me to take a deep breath. It felt like I was participating in my own death. I wasn’t supposed to survive that, so I felt like I was asked to take my last breath. Breathe deeply and go to sleep w a 15% chance of surviving. I took a deep breath in and exhaled the name of my God. The anesthesiologist was brilliant and supportive.

When I woke from a surgery done only a few times in the United States, the nightmare wasn’t over. Did I survive a 10 hour surgery only to bleed to death? The nurse held my juggler closed with her hands because I would not clot. Another nurse held the artery in my groan. Other means to stop the bleeding were used too but the main way they got it to stop was to clamp them manually w me awake.

Despite the violence in my childhood, I never begged my mother for my life or for her to stop. In the hospital that day, w the sheets turning red, I begged the nurse to please not let go. She said she wouldn’t. She said to be quiet, turn my head to the left and look up. Eventually I woke up in the arms of my friend. The first thing she said was, I never knew you were this sick. This is Lupus? She held me.

Amazingly, I only have one physical scar from the surgery to get all the blood clots. Despite the foot being dead, I had to wait 2 more months before they could amputate it. The skin began to slough off. That sight is burned in my head.

The recovery room after the blood clots surgery was interesting. My bed was in the middle of the room. It tipped in different degrees, went all the way to the floor and quite high up. I had my own nurse. I was her only patient. I still remember her name.

There was a large area w homey furniture to the right and down a step, other friends were allowed to stay. I was in complete shock and so was everyone else.

Daily, for five months they took my blood directly from the vein, not the IV. I understood why but it still felt like torture. Changing the bandages on my new stump sometimes took 2 hours. It was torture. I felt like I was going to crack.

Dr D and I are discussing possible emotional and cognitive issues as a result of the stroke. We don’t feel that Pseudobulbar affect (PBA) applies to the fullest extent, but we are exploring emotional differences since the stroke.

What I’m aware of at this point is that I’m unable to emotionally or physically cope. I feel like my insides are missing and have been replaced with a dark hole and overwhelming despair. I don’t feel like I can reach inside for strength because I feel hollow.

In 2020 I was assaulted. Where am I safe? How do I protect myself? I’m afraid.

I need mercy.

Faith

Dignity in sickness and in health

Content – Death of baby while in the ER. Talk about crying but that’s all.

I was piddling around when suddenly I had to use the restroom. I knew when the feeling came on that I had seconds to get to the there so I raced, but didn’t make it.

This is the life of an amputee. I fall out of the chair or I can’t get there fast enough and wet myself as I fall while trying to transfer to the toilet. It’s crazy!

After not making it and getting cleaned up, I was very tired. I realized I only had one sock on but I was too tired to put on the other or take the one I had off, so I left one off and one on.

As I sat in the chair I began to sweat profusely and to feel nauseated to the point of throwing up. Then I started having a hard time breathing. Inhalers weren’t working. I couldn’t breathe. I hit the Life Alert button on the floor.

What felt like 15 minutes later, the ambulance showed up. Four extra people pushed their way into my space and for some reason it scared me. I didn’t understand why I was afraid AND starting to become combative, but I was.

One of the EMT’s asked why it’s so hot in the apartment. He also said it was extremely humid, too humid for my plants, terrariums, cat and me, he said. He said I was even hot to the touch.

After I got to the hospital they discovered I have an issue with my heart because of chronic dehydration. They didn’t make any conclusions about my breathing problems. No more blood clots though.

They wanted to take a CT scan of my head and chest, which I have done a million times. I got in there, laid down and proceeded to freak out! I said, let me up! The lady rushed to me and said, “What is it? Can you tell me what you’re feeling?” I said, “Rage and fear! Let me up NOW! So I was given Vistaril (glorified benadryl) to relax. About 30 minutes later I took the test and it came back clear. I couldn’t believe how I responded the first time.

The nurses had a hard time getting the IV in bc of dehydrated veins. They stuck me 5 times. My blood kept coagulating too fast while trying to take it. Seems my blood disorder is alive and well.

As I was having my blood drawn a woman in the ER started to cry. It was a gut wrenching cry, the cry that says a child has died. The patients were all crying with her. It was horrible. She cried and cried then screamed, “My baby! My baby!”…… Oh man! I well-up now just think about it.

When she first started crying I asked the nurse if he understood what he was hearing. He said yes, I just heard my own soul break…..

I cried so hard. I mean I wept right there, openly. There is no greater loss or grief than the loss of a child, none.

At that time several ambulances pulled in bc the closest hospital was closed to new people because of ransom ware. People were being placed in the hallway and in any cubby hole they could fit in.

Twelve hours after arriving I was going to be discharged to my Hematologist’s office for further care, but I had to use the restroom before leaving. I told them about my bladder damage but it still took 10 minutes to get to me. I wheeled to the restroom and about 15 seconds before I got to the door, I wet on myself, soaking my clothing. I changed into 2 gowns but was too tired from everything to get those horrid yellow hospital socks back on my feet. I sat double gowned with a bright yellow sock dangling from my amputated foot. I thought to myself, I might have to go back to wearing depends. Sigh.

I just want dignity. Going to the hospital this time was rather humiliating. Leaving in 2 gowns because I wet myself was humiliating. This prompted the painting of a child holding on to a white balloon in the midst of darkness. There are several faces in the dark and a shadow figure to the right and the bottom.

“White Balloon” is in acrylic on paper and is about 5 inches tall. It’s a baby painting with a big message: I’m trying to hold on to and protect my inner peace but everything around me wants a bite.

Faith