Bad Things Happen to Good People

Posted on by Faith

It’s sobering to think that no matter what we do or don’t do, bad things happen, sometimes in rapid succession.

There’s an historic example of a man who lost loved ones, employees, finances and his health in no time flat. When I think about his life before disasters struck, I can see he did everything right, then blam! When reading that account there’s something I noticed, something I missed about it 5 years ago. He asked a lot of questions to help him understand his situation.

This poor guy got a lot of flack from people who should have supported him but didn’t. True help came from an unexpected sourse. But what gives me pause is how the gentleman handled himself during the entire nightmare. He listened more than he spoke. That’s significant for me right now.

I have so much going on with my health that I wonder how much one body and one mind is supposed to take? I’m not alone in piling up devastations.

I’m shocked and horrified by what my friend from the hospital in 2018 has gone through. It’s not bad enough she has Lupus, was on life support, had a stroke, had to relearn everything from being paralyzed to the point she was only able to move her pinky finger. Do you know the fight it takes to come back from that?

She spent significant time in a nursing home which is where we met. After she left and hoped to move forward, she had cancer and needed a double mastectomy! All without the support of her parents, for whom she openly grieves. Really?! Can our girl please have a break, too?

I think I understand even better why it’s best to take life one day at a time. I make arrangements then do day to day battle towards the fulfillment of the arrangements / goals. A day at a time is hard enough. I’m not about to double up on troubles.

As it stands, I’m going to need 2 hip replacements due to avascular-necrosis (AVN), the left is first. I can hardly sleep bc the pain has been high. Sitting can be difficult.

I’m discouraged if not fearful. I don’t want to have a knee jerk reaction to anything but I do want to prepare. I’m so grateful for having a good CNA. Please let her stay!

I’m working to downsize my responsibilities. In addition to selling 5 of my largest plants, I’m going to need to downsize pets before a yet to be scheduled total hip replacement on the left followed by an eventual total hip replacement on the right.

I’m going to rehome my two Madagascar Tomato Frogs as one complete unit. They come with their bioactive terrarium. I placed them on Marketplace and listed the various plant types, hard wood, hides, lights, screen and locks. These were purchased from Josh’s Frogs as early juveniles. They remain healthy at age two.

I hate to see the Tomato Frogs go. There’s no way on earth the 100g White’s Tree Frog terrarium is going anywhere. Don’t even ask lol The only pets being offered are the Tomato Frogs. Everyone else is staying. We already know Joe Schmoe’s place is secure.

Emotionally I feel hopeful about this. I fear having hope that maybe…. maybe with new hips I might walk again. I’m afraid to put my energy into what seems impossible.

As I was writing this, it occurred to me, I shouldn’t feel stupid just because something I hoped for didn’t turn out. For some reason I thought, if I openly hope to walk again but it doesn’t happen, I may feel foolish. And I will have made others hope without pay off for their support. This is wrong. Who wouldn’t hope to walk again? Who? And what friend witholds support because their personal pay off isn’t high enough?

I fear disappointing people. If I don’t walk will I have wasted their time? l honestly feel ashamed that I’m getting ready to put my friends through yet another ordeal. The hip replacement isn’t the ordeal, it’s my blood disorder related to Lupus that has me so worried.

My hope is to listen to the support of my friends without countering it with fear of disappointing them.

I intend to speak less and hear more. I don’t mean silence. I mean that my personal expressions and opinions don’t have to be shared in full, at all times. In my private life, I need to allow others to express themselves more.

There’s a time to speak and a time to listen. If I’m talking to a friend, I’ll hear more and speak less. In a group of people I don’t know well, listen more, speak less. Perhaps by not dominating the conversation I’ll hear the tid bit I need that changes the day from burdensome to manageable.

Faith

Suicide. Secrets. Imaginary boxes.

Posted on by Faith

Subject matter – No details of anything but I do talk about where I am with grief. Very emotional….

I’m all over the place today. Today my CNA asked about K. I basically just said that sometimes young people don’t have enough life experience to fully understand “this too shall pass.” We talked about her children and grandchildren, about life goals and achievements. It was nice. What I didn’t expect to was to have yet another conversation about suicide a little later in the day, online. That conversation felt like it wiped me out. I had a headache by the end of it. I still hope that person is ok.

I’m struggling with concerns about being weird. I don’t know how to change that so that people who are a little more typical won’t run away. I feel like I live a life of secrets sometimes. People in my everyday life can’t know about the Dissociative Identity Disorder. No, most people aren’t able to handle that. Society barely can manage PTSD, they sure don’t need to try to manage the DID. I’d never tell my CNA she has more than one client.

I wonder if there will ever be a space I can share with another human being without fear of being ostracized, without misunderstanding basic human intentions?

I just read that sentence and it occurred to me that I feel alone and lonely.

There are many things that now feel like they fall into the “I can’t” category. I long for adult conversation outside of my apartment, which happens to be an extension of inside my head.

I feel like a trapped animal while sitting in a wheelchair.

Last Monday I talked to Dr D about trying to put away issues I can’t do anything about or that I’ll deal with later. I don’t like the standard way he showed me so I changed it a little bit. He said to visualize putting problems in a box then put the box up. That has worked once for me, but not again, so I changed it a little bit. I have two small treasure chests. One small box holds letters and notes about things I can’t do anything to change. The other treasure box is a little larger and holds issues that I’ll manage at a different time. The two boxes don’t sit out in the open. I put them up.

I have no intention of adding anything at all about K’s death bc it feels like his death is all I have now. I’m afraid to let go of the grief. There are no new memories to be made with him. There’s just grief. If there’s no grief then even the memory of him feels like it will fade. I feel like I’ll fade.

Its odd to hate the grief but still that’s all that’s left. I still see one photo of him in my head. He’s 3. He smiled at me over his shoulder. I think of that photo now and I want to ask him, why did you make me love you if you were just going to leave like that! Why did we survive, what was all that for? I try not to let my head go there too much.

I have a question for him – knowing everything we know / understand now, would you do it all over again? Would you take your life all over again?

Its late. I should eat something. I could use a good meal but that won’t happen until tomorrow.

Faith

Sunflower Wheels

Posted on by Faith

This painting covers several life events. It is true to the Sundrip style in that there are hidden people and objects, and done in abstract.

I appreciate photographing work in progress because it gives me a different perspective.

The ppainting is busy but it’ll come together soon.

Creating things has continued and it feels great. It has helped with anxiety and depression which right now is pretty high. Dr D has been checking in with me concerning suicidal thoughts. I am too close to that feeling of tossing in the towel.

I’d be lying if I said the figures in here are random figures. I seriously have to work on the bird. Lol

Tomorrow should be a day to celebrate. They’re going to deliver the electric wheelchair. I was approved the first time. I should be happy but it feels like a loss. It feels like a totally different way that I’ll represent myself to the world. I identified with the manual wheelchair. It’s been the only chair I’ve sat in for the last five years. No lounge chair or anything, just this. It took a while to accept how I’d represent myself to the world. I got comfortable in it but now it feels like how I represent myself to the world is changing. It’s so hard to explain what I mean.

In the manual wheelchair I did have to deal with people telling me I should walk and I could be cured. Representing myself as a manual wheelchair user was hard. I got a lot of pressure when I told people it’s not worth the pain to walk. It’s simply not worth it. 19 falls in a year was too much.

I wonder if people will pressure me to use the manual more than the electric? Seriously, who knew that friends would have to accept that I’m not ambulatory and that they’d take it so hard? Now I wonder if the electric wheelchair means they have to get used to seeing me in it.

I can’t express how much being a manual wheelchair user is wrapped up in how I identify myself. Now that identity is changing. I’m feeling like a loss. I hope the emotional transition is smooth. I’m sad right now though.

  • I’m still taking all meds which is obvious by the weight gain.
  • Dr D and I talked about how noisy it is in my head. The talking is incessant.
  • Despite being teased, I’ve started looking for wheelchair ballet. I’ve found several tutorials that I enjoy.
  • Someone recently told me to stop blaming myself for the nurse’s aides not working out. She followed up by telling me to stop always thinking I’m at fault. That was the company owner. Their last day with me is tomorrow.
  • I’m pleased to be able to listen to music regularly.
  • I go in to the dental surgeon about my broken tooth and other dental issues.
  • The plants here are doing very well. I love seeing new leaves.
  • Dissociation is regular, with lost time. Arial Little and Ariel Michelle pop out at inconvenient times. It’s noticeable but I don’t address it and they haven’t asked. Joan has been out more than me, Jordan.
  • Anxiety has gotten so intense that I feel like I want to hold something in my left hand for emotional security. I have a tiny stuffed duck that I’m holding. I use to bring him to therapy all the time.
  • I’m going out of town in July. Hotel reservations are set. I’m so excited I can’t see straight.
  • Without friends and family this leg of my life would be too much to bear alone. It’s true that love can heal some wounds.

Faith w Jordan

Art and Processing Life Changes

Posted on by Faith
2023

Anxiety, her name is Faith

This last week has been trying. My head tried to take me down depression street. I needed rest from the world so I turned my phone on do not disturb for the most of the day. I’m definitely trying to take one day at a time but there’s so much from yesterday that plagues me today. Today I had yet another tooth that broke off at the gum line. Unfortunately, it’s in the front.

I have issues with dental hygiene because I can’t use toothbrushes. I can’t stand the way it feels in my mouth. The dentist gave me mouthwash but the damage to my teeth is significant. If I had it to do all over again I’d find a way to keep them healthy. How, I don’t know.

I’m painting a piece about loss and finding traction to move forward. This is much larger than usual for me. I’ve been planning a painting where the wheelchair is made of sunflowers.

detail left side

It feels like a piece that is helping me truly let go of some of these things that pain me. It’s no where near finished but working on it has helped me deal with overwhelming anxiety.

My little place genuinely feels like an art studio now that I’ve got a bunch of art in various stages of completion.

SOLD

I’m pleased that my little bag holder doll with glasses has found a home. The glasses were the final touch. 🙂

Joe Schmoe, age 14

Despite the fact that it’s not even midnight, I’m going to take a PRN and go to sleep. Joe and I need a fresher start tomorrow. Better sleep will do a lot to make tomorrow better than today. Let’s just hope I don’t need to go to the restroom every 2 hours like last night.

Dang, menopause is kicking my butt! Is my bladder the size of a pea now? In addition to menopause, my bladder is over active when I’m feeling stressed. It’s helpful to know my symptoms (over active bladder) so I can then respond appropriately; manage stress better, don’t internalize so much.

In addition to snuggling with Joe, I’m looking forward having dinner with friends, at my place, on Sunday.

Faith

Healing. Heart and Rock Art

Posted on by Faith
Fractured but still joyful

Drawing and doodling continue to be my primary way of relieving anxiety; however, I may have a new way in a few months. Before the wrists, my doctor approved me to do one hour of vigorous exercise each day. I enjoy exercise. Always have.

I was going to go to the gym on “amputee night, ” as well as other planned physical activities. I can still do some stuff but the gym is going to have to wait. It’s going to be a bit b4 I can do that much.

It’s the small bones in the base of the thumb and wrist area that are broken. I chose not to have a fixed cast bc I’m a bit claustrophobic. So far I’m dealing better adjusting to the ones I have. Still kills me it had to come out of my pocket!

I’ve been painting more rocks while wearing the basic wrist braces I have. I also noticed that lately, hearts have shown up quite a bit in my art. I put in on the chest of figures or hide them in crosshatch or shade. Now I’ve moved to painting hearts on random rocks. I feel compelled to do it. I’ve not explored why, and I probably won’t. But I am allowing myself to paint hearts on rocks.

One rock has a heart on top but the rest of the rock is black. Mixed in the black are hints of blue and orange. I sealed them with Mod Podge. I’ve still got the painted rock from when I was in the hospital. 🙂 These guys make great encouragement when arranged together in a bowl.

The casts kinda hurt and they don’t let me do too much. Using the restroom is interesting. Lol.

For a bit the broken wrists took me back to one of the best years growing up. During my Sophomore year I rode my bike to theater club and loved it. I saw my mother very little. I remember fondly how life was very much a teen movie plot. I remember the summer and how much fun I was having. My sister had fun too but she shattered her wrist that year. She also stole my boyfriend. See what I mean, teen movie drama! The Breakfast Club. Pretty in Pink! There was deception, inner conflict, school life and music 🙂 I remember dedicating love songs on the radio to my boyfriend. I love memories like this bc they’re normal and innocent. Sisters make immature mistakes. We were just kids.

It’s helpful for me to look back and see normal parts of childhood. It feels important to have affirmation that I wasn’t a victim child being abused 24/7, like that was all I was alive for. I had good times, especially life as a student.

Faith

Remnants. Art. Seeing.

Posted on by Faith
Behind the curtain. Behind the light.

I’m getting ready to start physical therapy here at home to help some of the healing along due to recent falls. I’m pleased it’s at home. I told the doctor I’m not able to tolerate going to a center for physical therapy because of the setup. There’s too much public activity, noise, movement and touch, for me to be able to think straight and not panic.

The painting shown is still being worked on. It’s one of my collages, which I have found myself drawn to lately. I’ve got many pieces of this and that saved art piece that on their own doesn’t work but added to other cut outs, makes a great piece of art.

This is very indicative of how I’ve been feeling. In my head, I see myself as fractured and torn, both physically and mentally. It feels good to take the remnants of my art pieces (pieces of me) and make something good come out of the broken pieces. It’s similar to what the Japanese do when putting pieces of a broken bowl back together with gold. My goal is to improve self esteem. I also enjoy it.

General updates

  • Soon iI’ll know a decision from my insurance about a new Jazzy Pride electric wheelchair.
  • Joe just turned 14. It makes me a little nervous. His only issue is from the stroke. He doesn’t see as well.
  • Joe is still very much a service cat. He still alerts me to my blood pressure dropping too low.
  • I learned to make sour cream from my homemade yogurt. I’m growing my own ginger and turmeric inside. This growing season I’ll do spinach and salad greens with grow lights. The point of all this homemade stuff is to shave some off my grocery bill.
  • My OCD has been raging but I’ve been able to challenge it. Things go terribly if my thinking is too disordered and I’m overly stimulated. When that happens I have to go on an apology tour.
  • Dissociation and switching has occurred regularly, including switching while my nurse and CNA are here.
  • I’ve been able to paint as before with no real issues. There’s one painting in my Etsy shop.

Another physical change has taken place that affects my art. I can’t see! Dang it! I have to wear glasses to read or see anything in front of me, including my dinner plate. I can see far away, though. I need to see the eye doctor soon for prescription glasses. For now I’ve got bifocals from Amazon. I like them. Life is easier all around with bifocals.

Interesting is that it feels weird painting through glasses. It feels like I now have a physical barrier between me and what I’m creating. It feels like I’ve got my hands through the holes of a glass panel trying to paint or sew on the other side of the window.

Another new tool at home is this comfy Kaftan. I’m obsessed! I also like that I found an Etsy taylor with prettier dresses for the same price. I’m looking to get two more by this summer.

Kaftan’s are user friendly for disabled people with incontinence. I have spastic bladder as a result of the Thrombectomy surgery, which means I have to change depends several times a day. The last thing I want is to take my pants off several times a day because I need to change depends.

These dresses are fun and they are sooo me! I think I’m loving my Oprah glasses and Kaftans. I have one pink, white and green tie dye and one blue, gray, black and white tie dye. Totally me.

Faith / Joan

Finger painting

Posted on by Faith

I broke both wrists and strained my right shoulder. Yeah. Not good. It’ll be interesting to see how the next 8 weeks play out. That’s how long before the shoulder and wrists start to feel better.

I still need to be able to paint so I’ll be doing pinkie paintings. 🙂 I’ll have to try to cover all cast and wraps. Thank goodness for press and seal.

I’m definitely not ok with this situation but I’m relieved I can accommodate my need to create.

Also, I’m still working on getting an electric wheelchair bc rolling myself around isn’t working right now.

Faith

Someone to Plead for Me

Posted on by Faith
2023

I’ve been thinking about updating the blog but it’s just kind of gotten by me.

How am I doing? I’m ok most of the time. Anxiety is still very high but I’m feeling much better. I’m better able to handle issues that arise with CNAs. That in itself is huge.

I’ve got a really good mix of medication from a very wonderful Nurse Practicioner. Although I can’t take anything to treat the OCD, this has been a regular discussion with my therapist and nurse practitioner. Learning about OCD issues has been uber triggering.

While eating is still an issue, hydration has greatly improved. Unfortunately my strength has not. I’ve fallen 3x in 3 weeks, w one requiring EMTS. I was seriously hurt. I may have to have outpatient surgery on my thumb.

My right shoulder is still swollen and jacked up. In an unrelated issue, I’ve got oral surgery coming up. Since I have to stop my blood thinner for 2 days before the surgery, all this makes me nervous.

I’m pleased to say that my shop has a piece of artwork in it for the first time since the beginning of the pandemic.

The piece is true to Sundrip in that it’s on paper, it’s small, brightly colored and highly symbolic. Even though the name is very emotional and personal, I’ve kept it. It fits what I was trying to express.

Someone to Plead for Me

The tallest figure is clearing the dark cloud hanging over her head and the head of those dependant on her. As they stand together, roots reach up from the ground trying to strangle their steps. Still, the largest figure offers relief and hope.

Someone to Plead for Me is available either in my Etsy shop or via PayPal. Please contact me if you have questions or are in need of financial assistance. I no longer mail internationally. I’m sorry.

I’ve got a much better arrangement for art now bc of the amount of privacy I’ve got now. I love the curtains put up. It’s just enough of a feeling of privacy that I can paint and leave art to dry without worrying it’ll be seen while drying.

I’ve also changed how my paint is stored. I now have everything horizontally which makes it so much easier to access. I put the paint in my “room” instead of in the walk in closet area. This means I have what I primarily use close to me without having to lug the paints back and forth.

So this is what I’ve been up to.

Peace to you,

Faith

Artist Thoughts: The Color of Healing

Posted on by Faith
First dress in 30 yrs

I recently purchased a new dress for the first time in over 30 years. I’d been wanting a kaftan so I purchased a pink tie dye kaftan. That got the ball rolling and lead to dress number 2.

When I was a child I didn’t wear much white because I tend to wipe my hands on my clothes, but unfortunately my family attached my worth to the color white. Here’s what I mean –

In 1992 I was getting ready for a function so I was ironing my white skirt and blouse. As I ironed, my sister kept walking past me saying, “Whore. Whores don’t wear white.” My mother and she were cruel. They wanted me to feel low and loathsome.

My sister was truly a piece of work. I got married in white and I could hear her evil words on that day, too. Fast forward to 2022. Not only am I older, I’m mad now.

I’m upset that my family attempted to harm me in whatever way seemed good. I was shamed so terribly over getting white dirty. It was always such a big ordeal. Living in the house with those two, I knew I was out numbered.

Recently I’ve been trying to reclaim a few colors associated with abuses. I’d been working on yellow for a while. I can say with pride that I have successfully reclaimed the color yellow and restored it to its proper place; next is white.

I’ve been tossing this idea around for a bit. It’s finally coming to fruition. I purchased a long, solid white Kaftan…..to paint in… to purposely wipe my hands on and get it all covered lol. Then of course I thought, what about shoes? So in February I’ll get a pair of knock-off, high top Converse, white for about $20. Converse right now are $115. I’m not trying to make that expensive of a point. Lol

Where the label on the shoe should be, I’ll put a sunflower. To tie the whole statement together, I’ll toss in a white dreadlock wrap and some hoop earrings.

I’m going target a few areas where I have unresolved issues such as over the heart, the lungs and the tassels at the bottom.

Colors of significance will include deep shades of purple bc the purple survivors ribbon is for Lupus, Domestic Violence and Dementia. All of these have touched my life significantly.

I don’t know when I’ll say the dress is “finished”. I do know I’ll wear it around the house to paint in. My paints are permanent and vivid.

A bit of irony – the dress arrived very wrinkled. I absolutely have to iron it before I put it on.

The rest of life is as troubled and discombobulated as everyone else. I’m taking it day by day. I find the world increasingly difficult to manage. I’m worried about the havoc politicians will reek on their world playground during elections. I’m not looking forward to racism being encouraged. Thank goodness I don’t understand the joy people feel when “sticking it” to someone else. But they love it.

While living in excessively violent times, politicians gleefully spit rhetoric to inflame groups and turn people against each other. It’s like it’s a billionaire’s game where the one with the most casualties wins.

Other than that, the frogs are great and so is Joe. The jumping spider is doing well. My CNA situation is “interesting”.

I’m a bit lonely right now though I see people regularly.

Rumination is pretty bad still. My emotions get intense but not like months ago. Sleep is too much or too little. Appetite is zero still, and last but not least menopause is kicking my butt.

At least I’m not as reactive and emotional as I was. I can catch myself sometimes, before I start, but it can be difficult to stop once started. I feel shame because I don’t feel I have the control needed to maintain interpersonal relationships. I’m worried about it. We’re still tweaking medication though.

That’s about the size of it.

Jordan

My Goals are Still in Sight

Posted on by Faith
New big ol glasses

I’m still rolling. 🙂

What an exciting few weeks. I went from mourning my old CNA to getting a new one with whom I am very well matched. Having her means I can let her do some things and leave other things to me. I can keep up with my letter writing and other forms of reaching out to people. And I can keep up with my artwork.

My goal was to re-open my Etsy shop but I’m not ready for that. I can paint and sew but right now I need to wait a little while longer. I’m ready to do the art, I’m not ready for the stress of opening up the shop and getting stuff out on time. The goal is to do so but at this time there is no tentative date.

I’m pleased that rumination has decreased, which makes thinking much easier. The depression is better under control, and my physical health is holding steady. Concentration is crap. It’s awful but at least I’m completing things even as I bounce from project to project. I have zero concentration any more.

Anxiety is wicked. I’ve changed up how I do my Delta-8 so that it will help with anxiety more and kick in sooner. Sadly there isn’t any guidance on this. It’s trial and error, but at least it’s still federally legal and the cost is still within my means.

THC brownie bites

I baked refrigerator dough cookies and brownies. I cut them into dose sizes then dripped liquid THC over the top of the goodies. Works like a charm. It can be done with THC butter, too.

THC cookie bites

My metabolism is deathly slow which is why it takes 2 hrs for a bite size edible to kick in. It lasts up to 5 hours though.

Pain is not my friend. Anxiety isn’t either, but the depression and physical pain is significantly less, which has raised my quality of life. I’m still a bit reactive but not even close to how I was. Eating is a chore but that is getting better, too.

Wow. Food prices! No matter how much food costs increase, my budget for food has not. It’s been stuck at $200 a month for a while now with no sign of change any time soon. I’m blown away by food prices. I’ve been trying to see where I can clip pennies but I’m not sure where anymore. Perhaps it’s not totally a bad thing that I have zero appetite. Amazon Fresh is so high right now that it’s straight up robbery!

Menopause – well, I haven’t gone to jail yet. A terrible hot flash at least once an hour. Decreased ability to handle stress. I click on people! An Amazon employee had me so frustrated that I asked to speak with someone else. She said, who? “I said, I don’t care, anyone but you.” I really wish I didn’t say that to her.

So, things are progressing in a manner I couldn’t see 6 months ago. I want to remember that even in the worst circumstances, everything changes. And since I am involved and invested in life, chances for positive change is strong.

I’m happy I lived long enough to truly believe and trust that things change. Youth doesn’t provide enough life experience to fully grasp that things change for the better and you can move past what feels impossible. I wish my brother could have understood that.

Writing another page of life

Faith – Morton’s Pride