Category: Lupus

Put Up or Shut Up

Posted on by Faith

Content – Domestic Violence, sexual abuse, negative family response to child abuse, emotional, CNAs

You know how you listen to a person complain but they fail to change what they’re complaining about? You try to be supportive but you just end up frustrated because the person will not make a change. I’m doing something like that right now.

I needed to make a decision, then I needed to act on it, so I did. I didn’t make the decision based off of what others might do but off my experiences. So, for now, I’m keeping the psychopath CNA that I have because in addition to her psychopathy, she shows up to work every day, on time and without those ridiculously long eyelashes and fingernails. This 65 year old woman doesn’t change her hair every 3 days which means I recognize her when she arrives.

When my CNA shows up she’s not drunk and her car has insurance and doesn’t smell like weed. She’s clean. She takes me to the store, on and on. She’s not obese. Why do they send obese CNAs to help an obese patient living in a tiny apartment? Make it make sense, boo. So yeah, I’m keeping her and her psychopathic tendencies until further notice. I intend to complain about her behavior. You don’t have to listen if you don’t want to.

Dr D asked if I was being abused. I told him I’m not sure I’d admit it if I was. I wonder if I’d respond like a battered wife, again. I know I would, which is why openly discussing issues with her to my therapist will be important.

I think I’d be embarrassed to say I’m being abused. The fear is that I won’t be believed or that I’m being too sensitive. I worry I’ll then be labeled as someone who has to be watched or I’ll make accusations. Let me explain.

After time in Florida with my now deceased uncle and my mother’s sister, I returned to Indiana on an emergency flight. In Florida I was going to be left home alone with an abuser, the uncle, for a full weekend. Very long story short, when I got back to Indiana I wasn’t allowed to be alone with my grandfather anymore. One aunt said she didn’t want me to have the chance to make accusations against him. I felt marked and like everyone would be on guard around me for fear I’d strike with a terrible accusation. I couldn’t be around any males alone anymore out of concern for them. I worry about the same kind of thing happening now.

I need help sifting through the drama and mayhem that happens here sometimes. I need help sorting through my emotions concerning treatment by any given individual. Why? Because my eyesight has been altered by child abuse and abuse in romantic relationships. I don’t see as clearly as I need to which is why I will benefit from bouncing things off my therapist concerning CNAs.

A second pair of eyes will be helpful especially when that person understands I’m not as emotionally strong as I come off. I don’t look like I could be abused and say nothing. I sometimes feel just like that little girl in the old photos on my wall. I’m not though.

I think it’s sad that I need to accept a certain level of drama and mistreatment as normal CNA behavior. I’m not a person that just anyone can work with. My mental health often clashes with the CNAs mental health. We are both guilty of impatience, preconceived ideas and plain ol being tired of people. Putting these CNAs in with us is like putting the odd couple together. It either works or someone is flipping out. It’s so stressful.

When she comes in I look at her to see what mood she might be in. Yeah, there are serious issues here but so far things remain under control as far as abuse goes.

This battle with caregivers will not end for me. I’ll have caregivers for the rest of my life. I’m learning how to deal with them and I’m learning how to be strong enough to speak up for myself when it comes to abuse.

If a person wants to argue, I can argue with the best of them, then tell everyone what happened. But if I’m struck, intimidated or threatened, chances are I’d say nothing. That. must. change.

Joan

Freedom. Up Hill Battle.

Posted on by Faith

I paid a heavy price in pain for a little bit of freedom from my wheelchair. I decided to walk about 100 feet up a ramp to my apartment. I needed to stand up at my normal 5 foot 3, and see the world from the angle I was accustom to.

The problem with walking outside is that I can’t feel the ground under me. With shoes on, I can’t feel the ground. It takes a lot of concentration. But today I needed freedom. I swear I feel like a caged animal willing to pay a high price to have someone open my cage and let me out.

The price I paid for about 100 feet is extreme pain in both hips. Both hips have avascular necrosis. I’m having terrible spasms. All of this just to stand up and walk for a little bit.

Was it worth the cost? Yes, for a few moments, walking in the sun, yeah it was worth this.

I’m in bed right now willing a slice of pizza hut over here. Lol It’s in the kitchen. Lol. But I’m writhing in pain. My legs hurt so badly, they’re squirming all over the bed down there. The pain is from the ankle up to the knee then both hips. I really want that pizza though lol.

My little walk reminds me very much of my little painting called Up Hill Battle. I guess sometimes the hill seems small to others but that doesn’t mean it’s not a battle for the person trying to climb it. We never know how much baggage a person is carrying, mental or physical pain. Even the slightest incline can be a struggle when the person walking is carrying a heavy load.

The miniature is complete. I gave it a nice seal yesterday. My intent is to have it in my shop this evening. If you don’t have an Etsy shop but there’s interest, you can send me an email. I accept PayPal. All contact info is on the sidebar.

I’ve been craving pizza for days. I really want that pizza in the kitchen but the price is a little high for me to get up and get it. I’ll use patience. I’ll rest then have pizza later.

It was still a nice day. I love outing day 🙂 Please let this CNA stay. I adore her.

Faith

Bad Things Happen to Good People

Posted on by Faith

It’s sobering to think that no matter what we do or don’t do, bad things happen, sometimes in rapid succession.

There’s an historic example of a man who lost loved ones, employees, finances and his health in no time flat. When I think about his life before disasters struck, I can see he did everything right, then blam! When reading that account there’s something I noticed, something I missed about it 5 years ago. He asked a lot of questions to help him understand his situation.

This poor guy got a lot of flack from people who should have supported him but didn’t. True help came from an unexpected sourse. But what gives me pause is how the gentleman handled himself during the entire nightmare. He listened more than he spoke. That’s significant for me right now.

I have so much going on with my health that I wonder how much one body and one mind is supposed to take? I’m not alone in piling up devastations.

I’m shocked and horrified by what my friend from the hospital in 2018 has gone through. It’s not bad enough she has Lupus, was on life support, had a stroke, had to relearn everything from being paralyzed to the point she was only able to move her pinky finger. Do you know the fight it takes to come back from that?

She spent significant time in a nursing home which is where we met. After she left and hoped to move forward, she had cancer and needed a double mastectomy! All without the support of her parents, for whom she openly grieves. Really?! Can our girl please have a break, too?

I think I understand even better why it’s best to take life one day at a time. I make arrangements then do day to day battle towards the fulfillment of the arrangements / goals. A day at a time is hard enough. I’m not about to double up on troubles.

As it stands, I’m going to need 2 hip replacements due to avascular-necrosis (AVN), the left is first. I can hardly sleep bc the pain has been high. Sitting can be difficult.

I’m discouraged if not fearful. I don’t want to have a knee jerk reaction to anything but I do want to prepare. I’m so grateful for having a good CNA. Please let her stay!

I’m working to downsize my responsibilities. In addition to selling 5 of my largest plants, I’m going to need to downsize pets before a yet to be scheduled total hip replacement on the left followed by an eventual total hip replacement on the right.

I’m going to rehome my two Madagascar Tomato Frogs as one complete unit. They come with their bioactive terrarium. I placed them on Marketplace and listed the various plant types, hard wood, hides, lights, screen and locks. These were purchased from Josh’s Frogs as early juveniles. They remain healthy at age two.

I hate to see the Tomato Frogs go. There’s no way on earth the 100g White’s Tree Frog terrarium is going anywhere. Don’t even ask lol The only pets being offered are the Tomato Frogs. Everyone else is staying. We already know Joe Schmoe’s place is secure.

Emotionally I feel hopeful about this. I fear having hope that maybe…. maybe with new hips I might walk again. I’m afraid to put my energy into what seems impossible.

As I was writing this, it occurred to me, I shouldn’t feel stupid just because something I hoped for didn’t turn out. For some reason I thought, if I openly hope to walk again but it doesn’t happen, I may feel foolish. And I will have made others hope without pay off for their support. This is wrong. Who wouldn’t hope to walk again? Who? And what friend witholds support because their personal pay off isn’t high enough?

I fear disappointing people. If I don’t walk will I have wasted their time? l honestly feel ashamed that I’m getting ready to put my friends through yet another ordeal. The hip replacement isn’t the ordeal, it’s my blood disorder related to Lupus that has me so worried.

My hope is to listen to the support of my friends without countering it with fear of disappointing them.

I intend to speak less and hear more. I don’t mean silence. I mean that my personal expressions and opinions don’t have to be shared in full, at all times. In my private life, I need to allow others to express themselves more.

There’s a time to speak and a time to listen. If I’m talking to a friend, I’ll hear more and speak less. In a group of people I don’t know well, listen more, speak less. Perhaps by not dominating the conversation I’ll hear the tid bit I need that changes the day from burdensome to manageable.

Faith

Remnants. Art. Seeing.

Posted on by Faith
Behind the curtain. Behind the light.

I’m getting ready to start physical therapy here at home to help some of the healing along due to recent falls. I’m pleased it’s at home. I told the doctor I’m not able to tolerate going to a center for physical therapy because of the setup. There’s too much public activity, noise, movement and touch, for me to be able to think straight and not panic.

The painting shown is still being worked on. It’s one of my collages, which I have found myself drawn to lately. I’ve got many pieces of this and that saved art piece that on their own doesn’t work but added to other cut outs, makes a great piece of art.

This is very indicative of how I’ve been feeling. In my head, I see myself as fractured and torn, both physically and mentally. It feels good to take the remnants of my art pieces (pieces of me) and make something good come out of the broken pieces. It’s similar to what the Japanese do when putting pieces of a broken bowl back together with gold. My goal is to improve self esteem. I also enjoy it.

General updates

  • Soon iI’ll know a decision from my insurance about a new Jazzy Pride electric wheelchair.
  • Joe just turned 14. It makes me a little nervous. His only issue is from the stroke. He doesn’t see as well.
  • Joe is still very much a service cat. He still alerts me to my blood pressure dropping too low.
  • I learned to make sour cream from my homemade yogurt. I’m growing my own ginger and turmeric inside. This growing season I’ll do spinach and salad greens with grow lights. The point of all this homemade stuff is to shave some off my grocery bill.
  • My OCD has been raging but I’ve been able to challenge it. Things go terribly if my thinking is too disordered and I’m overly stimulated. When that happens I have to go on an apology tour.
  • Dissociation and switching has occurred regularly, including switching while my nurse and CNA are here.
  • I’ve been able to paint as before with no real issues. There’s one painting in my Etsy shop.

Another physical change has taken place that affects my art. I can’t see! Dang it! I have to wear glasses to read or see anything in front of me, including my dinner plate. I can see far away, though. I need to see the eye doctor soon for prescription glasses. For now I’ve got bifocals from Amazon. I like them. Life is easier all around with bifocals.

Interesting is that it feels weird painting through glasses. It feels like I now have a physical barrier between me and what I’m creating. It feels like I’ve got my hands through the holes of a glass panel trying to paint or sew on the other side of the window.

Another new tool at home is this comfy Kaftan. I’m obsessed! I also like that I found an Etsy taylor with prettier dresses for the same price. I’m looking to get two more by this summer.

Kaftan’s are user friendly for disabled people with incontinence. I have spastic bladder as a result of the Thrombectomy surgery, which means I have to change depends several times a day. The last thing I want is to take my pants off several times a day because I need to change depends.

These dresses are fun and they are sooo me! I think I’m loving my Oprah glasses and Kaftans. I have one pink, white and green tie dye and one blue, gray, black and white tie dye. Totally me.

Faith / Joan

Finger painting

Posted on by Faith

I broke both wrists and strained my right shoulder. Yeah. Not good. It’ll be interesting to see how the next 8 weeks play out. That’s how long before the shoulder and wrists start to feel better.

I still need to be able to paint so I’ll be doing pinkie paintings. 🙂 I’ll have to try to cover all cast and wraps. Thank goodness for press and seal.

I’m definitely not ok with this situation but I’m relieved I can accommodate my need to create.

Also, I’m still working on getting an electric wheelchair bc rolling myself around isn’t working right now.

Faith

My Goals are Still in Sight

Posted on by Faith
New big ol glasses

I’m still rolling. 🙂

What an exciting few weeks. I went from mourning my old CNA to getting a new one with whom I am very well matched. Having her means I can let her do some things and leave other things to me. I can keep up with my letter writing and other forms of reaching out to people. And I can keep up with my artwork.

My goal was to re-open my Etsy shop but I’m not ready for that. I can paint and sew but right now I need to wait a little while longer. I’m ready to do the art, I’m not ready for the stress of opening up the shop and getting stuff out on time. The goal is to do so but at this time there is no tentative date.

I’m pleased that rumination has decreased, which makes thinking much easier. The depression is better under control, and my physical health is holding steady. Concentration is crap. It’s awful but at least I’m completing things even as I bounce from project to project. I have zero concentration any more.

Anxiety is wicked. I’ve changed up how I do my Delta-8 so that it will help with anxiety more and kick in sooner. Sadly there isn’t any guidance on this. It’s trial and error, but at least it’s still federally legal and the cost is still within my means.

THC brownie bites

I baked refrigerator dough cookies and brownies. I cut them into dose sizes then dripped liquid THC over the top of the goodies. Works like a charm. It can be done with THC butter, too.

THC cookie bites

My metabolism is deathly slow which is why it takes 2 hrs for a bite size edible to kick in. It lasts up to 5 hours though.

Pain is not my friend. Anxiety isn’t either, but the depression and physical pain is significantly less, which has raised my quality of life. I’m still a bit reactive but not even close to how I was. Eating is a chore but that is getting better, too.

Wow. Food prices! No matter how much food costs increase, my budget for food has not. It’s been stuck at $200 a month for a while now with no sign of change any time soon. I’m blown away by food prices. I’ve been trying to see where I can clip pennies but I’m not sure where anymore. Perhaps it’s not totally a bad thing that I have zero appetite. Amazon Fresh is so high right now that it’s straight up robbery!

Menopause – well, I haven’t gone to jail yet. A terrible hot flash at least once an hour. Decreased ability to handle stress. I click on people! An Amazon employee had me so frustrated that I asked to speak with someone else. She said, who? “I said, I don’t care, anyone but you.” I really wish I didn’t say that to her.

So, things are progressing in a manner I couldn’t see 6 months ago. I want to remember that even in the worst circumstances, everything changes. And since I am involved and invested in life, chances for positive change is strong.

I’m happy I lived long enough to truly believe and trust that things change. Youth doesn’t provide enough life experience to fully grasp that things change for the better and you can move past what feels impossible. I wish my brother could have understood that.

Writing another page of life

Faith – Morton’s Pride

Anxiety. Support. Long Haul.

Posted on by Faith

I bought a second sketchbook that’s small and easy to take with me if / when I leave the house. It’s also easier to hold in bed. And for the first time in a good long time, I had to buy art supplies. I was able to get ahold of the paint needed so I’m happy with that.

Right now I’m making the art supplies area more disability friendly.

Symptoms of the clinical depression (my nervous breakdown) significantly decreased but have crept up again. After my aide left, a person with whom I felt safe) abandonment issues began to derail me. At least this time I know better than to wait to see if the depression, anxiety, etc will get better. I immediately began using the skills I’ve learned in the last year so as to never revisit that horrible-for-everyone, deep, hollow place.

I remember thinking that everyone has an invisible line that represents a division between coping and totally losing it. It feel like as long as I don’t cross that line I’ve still got hope of getting better. Well I blew past that line and had no way on my own to get back. I couldn’t reach inside and pull up strength because I was hollow. There was nothing to pull from. I couldn’t even stop or control the emotions anymore. I felt stranded in the middle of the open sea.

I’m not where I was last time but some of the symptoms are troubling. The decline began shortly after being triggered by the loss of a CNA I felt safe with. Right now I am regrouping and using new skills so I don’t again completely fall to pieces.

I’m grateful for art. I can’t believe I did that mental health crisis with very little art. I had no way to redirect anxiety so it felt like it just sat inside eating away at me.

My included art piece shows individuals with solid black skin. I noticed the color of the shirts as being significant. The person who reflects my current state is wearing an orange shirt. I don’t think I’ve drawn my sister, me and my mother together in at least 5 years. This time it’s definitely all three of us, with me in the orange shirt with one foot and extra long arms.

When I looked at the chart created to record color significance, I could see a bit more into what I’m actually feeling. Come to find out, it’s very much representative of what’s going on in my life right now and what I’ve been thinking about.

The Art Therapy gallery explains color and symbol significance.

  • Orange: Fleeting courage or self doubt, ambiguity,
  • Purple: Self worth, pride
  • Black: Emptiness, vacant, does not exist, emotional death
  • Red: Strength, courage, empowered

My mother has been on my mind quite a bit because of my menopause symptoms. I remember seeing some of this as a kind.

I remember one winter my mother only wore a long, thin, black trench coat (it was the 80s ok) despite the fact that it was freezing cold. Several years later she had it so cold in the house that I wore a jogging suit to bed. Fast forward to 2022. The heat is still off. I had no idea menopause would be so life disruptive. My friend said her severe covid was easier than menopause. Wow.

Lastly, I did finish stealing the art piece but I’ve not put new art up for sale. I’m not certain I’m ready for that step just yet. I’m just going to keep at the art while working on emotional issues.

Faith

Wheelchair Life: Grow Where You Want to Grow

Posted on by Faith

I’m in my feelings today. I feel very limited, if not left behind. I’m mad at wheelchair life right now.

I truly enjoyed being at the park with friends for a bonfire back in October. That was so healing. Right now though, I long to wander, to hike trails and sit under a tree with my dog. I miss that today.

P17fieldfma - on the easel

I hope to get an electric wheelchair soon which would let me get to the front of the building, down a very long ramp then finally on the sidewalk. The sidewalk stops at the property line. No sidewalks. That’s a problem. We’ve lost 2 residents in 5 years bc they rolled in the street. I’m not doing that. There’s simply no where to go off property that’s wheelchair accessible.

I can’t tell you the longing I have to go outside my window and get to those beautiful rocks. I was told that our screens raise up. I don’t have to take it out then struggle to get it back in. I’ll have care again soon so I might test that.

The best way to manage my aching heart here is to do something for others. I feel like a trapped animal right now. Well, let me get outside this trap by reaching out.

Sitting in the grass keeping my problems in perspective

I’m so happy to say that my pen pal list has maxed out. It’s full. I actually have 20 letters that go exclusively to the elderly in nursing homes. They write back 🙂 Also, all the spots for plant homecare / babysitting are full.

I just added a monstera deliciosa from a wonderful person who needs nursing home care due to dementia. These’s a spider plant, monstera, rex begonia and an African violet that I’m looking after. Most are of memory care patients but one is from a person who takes care of her grandfather who has dementia.

It feels good to help with their favorite plants that they’ve taken care of for a long time. It’s something I can give to my friends who have been so giving to me.

There’s a plant that belonged to three generations of very lovely people. I’m so honored! Being able to take the plant torch is an amazing feeling.

Faith

Words to yourself matter, choose them wisely

Posted on by Faith

Over a week ago I saw my nurse practitioner. We talked about the PTSD from the hospitalization in 2018. I told her that I just can’t paint anymore. I added, “When the legs failed and my foot was amputated, so too was the art in me.” Well, I’ve said that before. I’ve been saying it for nearly two years, but that time I truly heard myself say it and I knew I believe it. That’s a problem for me. Don’t tell me I can’t do this anymore. I was mad at myself. How dare I speak to myself that way?! I can’t be the person I was born as? I won’t accept that.

Point blank, I was born an artist. That art comes in many forms; culinary arts, painting, making dolls and creating terrariums. I’m driven to make things in an artistic way. The only way I stop being an artist is when I stop breathing. It was close back in 2018. Even still I want to be in an artsty urn. It’s already been chosen cause y’all can’t put me in any ol’ thing. I’m just happy I’m not in said artsy urn right now.

When I realized I actually believed that I can no longer paint, like I said, I was mad. Later that evening I got out my paints and started painting. While painting I remembered saying something very important to myself – It doesn’t matter if it’s good, just enjoy the process. That’s the moment things changed.

It doesn’t matter if it’s good! I was willing to have the art piece fail and that is significant. Before getting new depression meds and having a little more clarity, I was too afraid to fail. It felt like I was a failure instead of the art piece not working out. But this time I didn’t internalize its possible outcome. That’s how I know I’m in a different space. I was able to separate the two. I’ve been painting for over a week now. I’m risking a bit more and it feels good.

I didn’t die in 2018. I’m still an artist through and through. Regardless of any amputation, there’s no way to amputate my art. I can’t tell you how relieved I am. I worked hard to get to this day. Oh my goodness I worked hard from the day they told me I wasn’t going to make it until this day. I’ve worked hard. It hasn’t been pretty, at all. Some things I messed up beyond fixing. I know I’ve hurt people by spilling anger or responding while unhealthy instead of just walking away. Why did this happen? Because I’m a speck of dust like everyone else and I do and say reckless things. But I am not a vicious person, just a profoundly imperfect one battling mental health and physical health.

I understand something now. You’d think I grasped this four years ago but I didn’t. I understand that I didn’t die in 2018.

My entire life changed. I can’t walk anymore but I’m alive. I’m extremely limited, but I’m alive! The person I knew myself to be left the hospital and the nursing home, then moved here. I don’t need to be afraid to live.

I was living this life of “why bother, I’m just going to fall over dead anyway. ” I was afraid to live, make attachments and risk a little because I just didn’t want to lose anything else. I feel like I lost so much in 2018 that the thought of losing anything else was unbearable. I was afraid to live. I’m in a better spot but I’m not OK. There’s so much more physical healing and emotional healing to do. I no longer worry I’ll have to endure it without my art.

What I’ve learned is that I believe the words I say to myself. I know you reap what you sew. If I plant tomatoes I get tomatoes. It works that way with words too. I was planting fear in my garden and that’s exactly what I got. Words matter. What I say to myself matters.

Art work – The painting changed quite a bit from when I started. It’s a collage now. And true to form, I’m working on multiple art pieces at once. My studio mascot Joe Schmoe is helping with quality control. He’s such a good studio cat and mascot.

I’ve been putting art in people’s homes since 2007. My 2023 art goal is to fill my own walls with my artwork. It’s time I did that. I’ll give an Etsy update soon.

Speak kindly to yourselves,

Until soon,

Faith

Dignity in sickness and in health

Posted on by Faith

Content – Death of baby while in the ER. Talk about crying but that’s all.

I was piddling around when suddenly I had to use the restroom. I knew when the feeling came on that I had seconds to get to the there so I raced, but didn’t make it.

This is the life of an amputee. I fall out of the chair or I can’t get there fast enough and wet myself as I fall while trying to transfer to the toilet. It’s crazy!

After not making it and getting cleaned up, I was very tired. I realized I only had one sock on but I was too tired to put on the other or take the one I had off, so I left one off and one on.

As I sat in the chair I began to sweat profusely and to feel nauseated to the point of throwing up. Then I started having a hard time breathing. Inhalers weren’t working. I couldn’t breathe. I hit the Life Alert button on the floor.

What felt like 15 minutes later, the ambulance showed up. Four extra people pushed their way into my space and for some reason it scared me. I didn’t understand why I was afraid AND starting to become combative, but I was.

One of the EMT’s asked why it’s so hot in the apartment. He also said it was extremely humid, too humid for my plants, terrariums, cat and me, he said. He said I was even hot to the touch.

After I got to the hospital they discovered I have an issue with my heart because of chronic dehydration. They didn’t make any conclusions about my breathing problems. No more blood clots though.

They wanted to take a CT scan of my head and chest, which I have done a million times. I got in there, laid down and proceeded to freak out! I said, let me up! The lady rushed to me and said, “What is it? Can you tell me what you’re feeling?” I said, “Rage and fear! Let me up NOW! So I was given Vistaril (glorified benadryl) to relax. About 30 minutes later I took the test and it came back clear. I couldn’t believe how I responded the first time.

The nurses had a hard time getting the IV in bc of dehydrated veins. They stuck me 5 times. My blood kept coagulating too fast while trying to take it. Seems my blood disorder is alive and well.

As I was having my blood drawn a woman in the ER started to cry. It was a gut wrenching cry, the cry that says a child has died. The patients were all crying with her. It was horrible. She cried and cried then screamed, “My baby! My baby!”…… Oh man! I well-up now just think about it.

When she first started crying I asked the nurse if he understood what he was hearing. He said yes, I just heard my own soul break…..

I cried so hard. I mean I wept right there, openly. There is no greater loss or grief than the loss of a child, none.

At that time several ambulances pulled in bc the closest hospital was closed to new people because of ransom ware. People were being placed in the hallway and in any cubby hole they could fit in.

Twelve hours after arriving I was going to be discharged to my Hematologist’s office for further care, but I had to use the restroom before leaving. I told them about my bladder damage but it still took 10 minutes to get to me. I wheeled to the restroom and about 15 seconds before I got to the door, I wet on myself, soaking my clothing. I changed into 2 gowns but was too tired from everything to get those horrid yellow hospital socks back on my feet. I sat double gowned with a bright yellow sock dangling from my amputated foot. I thought to myself, I might have to go back to wearing depends. Sigh.

I just want dignity. Going to the hospital this time was rather humiliating. Leaving in 2 gowns because I wet myself was humiliating. This prompted the painting of a child holding on to a white balloon in the midst of darkness. There are several faces in the dark and a shadow figure to the right and the bottom.

“White Balloon” is in acrylic on paper and is about 5 inches tall. It’s a baby painting with a big message: I’m trying to hold on to and protect my inner peace but everything around me wants a bite.

Faith