The Whole World is On Fire

This company, CICOA, that serves the elderly and disabled to find so called care companies to come in the house has now been told that I have DID. They, CICOA, told the doctor if I wanted care I’d have to give them both psychiatric and medical diagnosis. I was not asked about this.

The company was told I have DID. They passed it along to the under educated care companies who pass it along to their caregivers! Are you joking? Are you joking!!

No matter what company I go to they’ll know I have DID, the caregiver may know as well. Everyday people don’t need to know this.

In Indiana, most of these places aren’t run by medical professionals but by well meaning individuals who saw a need in the community. But well meaning doesn’t mean you know what to do or not to do or to just leave it the heck alone.

I told the CICOA worker that I spent years, years making sure my DID didn’t get out but nope, here we are, you guys couldn’t let it go. I said, so now that you know, who is educated enough to manage it? None of you! Not a single person in that building has the slightest bit of education to manage my disorder. She said, I have a bachelor in psychology. What’s that supposed to do? If you have a BA then you should have known to be more careful.

Curiosity killed the cat. The cat is me.

It matters that uneducated people are going to have this information and that I’m going to AGAIN hear how I need to just pray the demons out, spit them out, excercist, oil, rituals and that I have demons. I won’t go through it. I won’t go through it again. I may not have to bc I gave CICOA quite the unedited tongue lashing!! They may kick me out of the program. I really went off.

I spent so long holding that secret together and it’s over because J is nosey and gave a form requiring my mental health diagnosis. All that happened on the heels of my CNA getting fired by me yesterday morning, the CNA I liked so much.

We’d begun fighting, outright arguing daily. I’d apologize, she wouldn’t. I started to worry about a few things I couldn’t prove but was suss of.

The last argument was when discussing going to the grocery store. I said I’d like to go to the pet store first because it’s less energy than the grocery store. She said, I don’t want to double back. I said, but as a disabled person it’s easier on me to do the easier thing first. She chimed in with, I have plenty to say about you being disabled but we don’t want to have that conversation.

It hit hard. I was dazed. Seconds later I said, yes, we need to have this conversation. Long story short, the Certified Nurses Aide believes she is qualified to cancel out all doctor diagnosis for her punny, sad, opinion. I’m amazed! Amazed. There was no way she was working here if she didn’t even believe I’m disabled. My goodness.

As angry as I was that I had to fire her, I did forgive that stupidity. She can never work for me, but forgiveness is offered to the CNA and her ridiculous actions. Why? So I can leave just a tiny bit of peace in a world that is very short of it.

As for CICOA there is no such forgiveness…. This dumpster fire is part of the rest of the world that’s on fire. Cause if you hadn’t noticed, the whole world is kinda on fire right now.

Michael Joseph is ok but not great. He’s sleeping a lot. He eats well. Still drinking. He’s clingy then he goes back to hide under the bed.

I took a photo yesterday bc I just turned a corner in life and I know it. I’m not sure what’s around the corner, but I didn’t just turn a corner in life. I could feel it coming for a minute.

Faith Magdalene

Joe update

Joe Schmoe update.

I stopped giving him this several days ago. Not going to say it was this, just saying I stopped giving it to him.

I WANT to say he looks better. He’s out from under the bed more.
He’s slow in the morning.

He didn’t recognize me at one point and got down low in attack mode, looking me in the eyes like I was a stranger. I left the area because I wasn’t sure if he was going to jump on me or not.

At a different time he didn’t recognize the caregiver that he loves so much. It took about an hour before he recognized her.

Its one day at a time to the vet next month. Still doing what I was told to do – observe, keep him comfortable. (sigh)

I made a sale. That’ll go directly to vet care coming up. Thank you. Thank you in advance for anyone who might be considering a purchase at www.Sundrip.etsy.com.

Faith

Delicate Leaves – African Violet Emotional Breakdown of 2024

Dr D asked how I was able to manage the trash three times? Honestly, it was mind bending hard. I went back three times because I felt like I’d failed or like I had something to prove. She said I threw it away to hurt her. I had to get it back.

I got a second text saying despite retrieving the plant, my efforts were not enough. It felt like I’d been punched in the chest. But that was the end of my emotional loan to the situation. It’s a plant. If she needs to go off the deep end over the plant then so be it but I’m jumping off the train. I will not argue over this. No response to texts about this mess.

This friendship isn’t over despite Dr D suggesting it might need to work towards that way. No. It needs a little break while she gets her mind right. He said, she’s going to do it again, then what? I said, yes she is, because unlike me she doesn’t have a PhD every week. This puts me at an advantage in the friendship.

As far as how I got through dealing with the trash, I planned it out. First I dressed for it. I had friends to call. I kept in mind my up coming appointment with my psychiatrist and psychologist on the same day. I have a certified nurses aide daily.

I was well covered to take the risk of going in the trash. I didn’t do it without back up or coping skills. Am I ok? No. But I’m not in hospital crisis. I’m not self harming. Things will calm down with a few art pieces and a few pots of tea.

Faith

The African Violet Emotional Breakdown of 2024

I’m not totally bashing this person because I know I’ve done what she did yesterday.

Her aunt had a small box of plants for me to adopt bc she’s going into a nursing home. Most of the plants were in rough shape. When I saw the African Violet with dull green – gray leaves but a desert dry root I tossed it thinking it was dead. Thus started the African Violet Emotional Breakdown of 2024.

The thing was the size of a silver dollar but that’s not important. What’s important are the over use of emotion and manipulation used concerning this silver dollar sized madness that I agreed to go dig out of my trash the next day.

So today is the next day. I took the trash out of the bag three times, transferring it from one to the other because she said this plant was “entrusted” to me and if she’d known I’d just throw it away she’d have kept it. She’s “grieved” and needs to “heal from the loss of the plant. ‘ The aunt is alive!

Dressed like I have OSHA training, I looked through the trash three times. I sorted through trash with BBQ sauce on it, coffee grounds, ketchup, plant soil and everything else. I was ready to give up when she sorta came into view.

The friend said she tends to love things like plants and animals instead of people. I told her. You know I have obsessive compulsive disorder. It was love for you that I went through the trash three times. It had nothing to do with the plant. It had nothing to do with how you worded your text.

How do you grieve a small plant but not think twice about my disorder? You said I didn’t understand you but where was it you gave me understanding? Did you stop and think how difficult getting in the trash would be?

All this over the top emotion is too much for this situation. You said you lost sleep over me tossing what appeared to be a lifeless silver dollar size African Violet in the trash. I lost sleep because I’ve got real problems. My cat isn’t well.

Faith

Chatter – Rip The Heart Out

CONTENT – My cat Joe is dying. Friend always contradicts me. (Changing meds.)

It’s been difficult watching Michael Joseph become weaker and weaker, sleep more and more. It’s tearing me up. I don’t know what to do with the anxiety sometimes.

I’m working on several art projects. I’m successfully working with my CNA. I’m successfully writing letters. I’m holding up my end of things and I’m proud of that. But I’m anxious as I watch my little guy grow weak and cry out in pain. He literally sounded like a cow mooing. It tore through me! My baby Joe Schmoe isn’t well! I can’t take it.

It’s interesting, the very first reaction is to distrust my instincts and listen to others but I’ve thrown that away. I’m his mother. I clean his litter box every day. I brush him every day. I feed him every day and remind him that he’s the mascot of Sundrip so act right little king! lol I hold him. I cuddle him. It’s me he sees day in and day out. We went through the lock down together. I KNOW JOE SCHMOE very well. Seeing him deteriorate is heartbreaking. My God!

Faith

The Deluge – Now in Etsy

The Deluge is complete and is in my Etsy shop. One of the things I point out about the balance. The woman standing has legs and feet that are wound around. Each foot meets a tiger lily, a child and a purple flower in full bloom.

It is haunting in some areas. Those are the areas to leave behind. Those are the areas of the past that I can’t take with me to the future that I am building here. I’m not going to another planet. I’m right here. But some of these things need to swim free because they no longer have a place here.

If you visit my Etsy it’s worded better 🙂 You may also purchase through PayPal. Please see appropriate email address on the contact me area.

Thank you for listening,

Faith

Rough Start. Grace to End.

When all else fails, buy flowers.

My CNA and I like each other very much. She said she’s here to stay. I believe her. But today was rough. She’s got a personal crisis. Instead of continuing to argue, right in the middle of the situation I said, I call grace. I choose to give grace.

I know something isn’t quite right. I’m not going to argue or raise my tone or question you. It’s over. I choose grace. She said nothing and got in the car to take me to the store where I found these beautiful discounted flowers.

Something very bad has happened in my aide’s life. I think I know what it is. I pray it isn’t. That’s way too hard to deal with. No flower can cover it.

Today I reassured her that I enjoy her company and like working with her. She smiled and said, I’ll see you tomorrow.

She doesn’t need nearly as much reassurance as I do.

I have a certified nurses aide with 30 years experience. I actually have quality care.

She’s African American, my age. We mesh well. We are polar opposites. My goodness she’s unorganized. Her car is so unorganized it makes me suicidal! I’ve never in my life… oh the chaos. The odd couple. But it works and it works well. I’m grateful for that.

I have prayed that I will learn a little more about humility * each time * I visit with my young Bible student or my CNA . Six days a week I’ve got an opportunity to mold myself into a better me by seeing my CNA.

I will style myself to be more gentle, slower with the heavy sarcasm, listen more, ask deeper questions, pause before I speak. I’ve got six opportunities where I can learn new skills.

My CNA may be professionally unorganized but she’s got humility down pat. There is much I intend to learn by her her. I won’t waste this opportunity.

Faith

A double shot of usefulness

I’ve not shown off my Philodendron Hope plant in awhile. It’s growing out of two Betta tanks.

I’m going to clip it back soon and allow certain leaves to mature. It’ll look nicer cut back.

I have hope.

There’s no doubt about the hope I have, but the path to it feels difficult at times. Fear is enemy number one.

I know I have hope. I’m just having a hard time keeping my fingers on it.

Maybe it should be enough, the fact that I can see it and know it’s within arms reach.

Well, in typical artist fashion, I’ve got several projects in different stages all going at once. Still, I’m encouraged by the “I Believe” piece.

It seems to carry the same symbols as two other pieces, which is very interesting to me.

I’m so happy to be making art just for me! And I so love that one young girl’s hair is 3 hearts instead of round puffs. 🙂

OMGoodness I have fallen in love with collaging entire works with my own art scraps. How satisfying!

It makes me smile to paint here in this little place I’ve created; sipping tea, dabbing paint brushes, writing letters and such. Recently a naysayer called the entire apartment an ecosystem. He has no idea how happy that makes a girl like me.

I enjoy waking up to meaning, purpose and usefulness in my little ecosystem- apartment. I could use a double shot of usefulness about now.

Covid update – still running a fever. Unproductive cough, mostly at night. I still break out in a sweat which feels different from hot flashes. I have GI issues, a rash on my back, my scalp inexplicably itches, too. My blood pressure has dipped so low that I’ve passed out.

I ordered supplies from Amazon since getting to the store is out of the question. Coconut water, cheerios and of course jello were among many of the supplies. Why do I love jello so much?

Please excuse me, I’ve got some cuddling to do before the day begins.

Faith

Out with the Hospital, in with the Clinic

I made all my appointments at the hospital every six months since 2018 but it was time for a change. I’m seeing the same doctor just at a clinic associated with the hospital. I’m happy I made the change.

People spoke to each other in the clinic and it wasn’t about their fight, it was about the beauty red fox family in one yard, a family of bunnies in another yard and pet frogs at my house.

We talked about birds and insects. I talked about insects with two people I didn’t even know as well as the Merlin app that helps me identify what bird I can hear outside. Most of the time I can’t see it but I can hear it so I look it up and do a bit of reading on it. Anyway, it was nice talking to them.

How’s my body? The heat has my body flush. Using my own topical is more effective than voltaren cream. I can use mine just about anywhere and without a time limit. My vitals are in good shape. My weight loss medication appears to be working.

I was to go to intensive out patient eating disorder treatment for 8 weeks but I was unaware of the distance. I can do virtual therapy with them but not intensive outpatient in person for 8 weeks. The transfer and travel time would be brutal. I’ll talk to my pdoc about it. Also, I’ve not been that far from home on my own, in a wheelchair. I’m afraid.

I’ve yet to travel anywhere alone since being in this wheelchair. I was going to go two blocks down the street not 30 minutes one way. Also, I’ve read the reviews and I don’t need the shame. Instead of flat out no it’ll be “not right now with a heavy chance of no.” They need better reviews for me to put forth the type of effort I’ll need and to endure the physical pain I’ll endure while sitting up through the sessions and traveling.

Faith

Brief Medical Hospital Stay

I’m home from a brief medical hospital stay but in the entry I’ve lead with emotional issues.

I have to admit I am emotionally excitable and I cry at the drop of a hat. Today I cried my eyes out concerning the CNA who left. I was crying because I hate being left. I hate the way she did it. She just walked out!

You know the company has lied (all the companies lie through their teeth up and down all the time). You mean to tell me they couldn’t find a lie this time so that her two weeks had advance notice? Lying is what they do. They couldn’t come up with something to make that transition easier instead of just boom she doesn’t work here anymore! and then for her to just walk in, I ask for breakfast she becomes irritated, says “don’t start with me. Today is not the day “ and walks out …….. it hurts deeply.

I’m so weepy today and I hate the fact that Mother’s Day is coming up cuz that’s all I’m seeing everywhere is Mother’s Day, Mother’s Day, Mother’s Day! I don’t even celebrate Mother’s Day but seeing it reminds me that my mother was mentally ill, cruel, unloving, and she left me too many times to count (saying it was my fault). My stomach hurts so badly. As heavy as that is, that isn’t why I was in the hospital.

I remembered something that will possibly help me move forward. This very materialistic, appearance conscious person, throws people away like candy wrappers. She can’t stand to be alone any length of time but if she can manipulate the support of others she’ll orchestrate an exit. The many exists she told me about we were while the person wasn’t home. It was planned behind their back. In other words, this is her MO. I’m just another piece of candy she got tired of and threw the wrapper on the ground. This is what she does.

It’s also hard knowing May 7th is the amputation anniversary date.

Hospital. I was in the hospital because of blood clots so painful I was writhing. My stomach turned violently but nothing came out. Violently! My complexion was off.

Of course they did every expensive test in the entire world and filled me with all sorts of stuff. But I come home with valuable information. I now have information that will help keep me out of the hospital so often. Sure wish I had it four months ago.

I was so exhausted when I came home that all I wanted to do was sleep. That did not happen. I had 5 necessary individuals to wait for, open the door and interact with before I could get some sleep. Coming home Friday was a long, long day.

Monday I’ll see my regular doctor. Wednesday I’ll see my Oncologist / Hematologist. I won’t get to talk to Dr D bc of medical appointments.

To keep me going I have the following:

  • Tears – They are cleansing. They are not a sign of weakness. They will help me expel toxins, relieve anxiety and stress.
  • I will have art – Get well cards for people at the Hall, my own artwork, doodling, any art
  • Letter writing – Nursing home individuals, others
  • Scripture, Prayer
  • Friends
  • Journaling – I have my written Journal, Gratitude Journal, Art Therapy Journal.

I will not abuse food or myself. My CNA will help me take all of my medications. She will help me to make sure I am doing all of my ADLs. And I’ll make it. It won’t be that long before I’m back on my feet emotionally and physically.

Thank you for reading.

Little Duck